WLS Codebooks
Note: Codebooks contain frequency data from the private data release. For some variables, these differ from the frequencies in the public release. Variables that differ between the public and private versions include "(not available on public release)" as part of the variable description, or a note indicating the difference between the public and private versions.
In Person: End of Life Death Reactions
JEOLDTH End of Life Death Reactions Module OVERVIEW The End of Life Death Reactions Module focuses on the participant's experiences of spousal and parental death. It was first introduced as part of the 2004 telephone interview and has been almost exactly replicated for the 2010 collection wave. Data were collected in the following manner: If the participant has experienced a spousal death since they were last interviewed - whether that was during the 1993 or 2004 collection wave - they will be asked a series of questions about the context of their spouse's death, including how much pain he/she was in during the last week of life, how prominently a Durable Power of Attorney for Health Care appointment or signed living will factored into his/her last week of life, and the extent to which his/her stated wishes for end of life care were followed. These are followed up with questions about if and how the death of the participant's spouse changed their health insurance coverage or financial situation (through a life insurance settlement, alteration in the compensation paid out by a pension or annuity, and so forth). Participants who have experienced multiple spousal deaths since last being interviewed will be asked to focus on the spouse who died most recently. If the participant has not experienced a spousal death since they were last interviewed, but reports a previously unrecorded spousal death that occurred within the 10 years prior to their 2010 interview date, the same sequence of questions will be administered. In these situations, the spousal death will have occurred before the participant's last interview. If, on the other hand, the participant was interviewed during the 2004 collection wave, has not experienced a spousal death since then, but has experienced a parental death, they will be asked about the context of their parent's death. The questions asked replicate those used to capture experiences of spousal death, with the exception of questions focusing on changes in health insurance coverage and finances, which are omitted. If the participant was not interviewed during the 2004 collection wave, the same sequence of questions will be administered if they have experienced a parental - but not spousal - death in the past 10 years. If the participant's mother and father have both died since they were interviewed in 2004, or within the past 10 years, they will be asked to focus on their father's death. Note that, if a participant has experienced both a spousal and parental death since last being interviewed, they will only be asked about the death of their spouse. Questions about parental death - if applicable - are only asked when the participant has not also experienced a spousal death. The 2010 version of the End of Life Death Reactions Module differs from its 2004 predecessor in four major ways. First, a series of questions about the participant's behavioral and emotional reactions to recent spousal deaths (those occurring within the 2 years prior to their interview) has been removed. Second, several questions about the participant's experiences of parental death have been added. Specifically, these address providing care for a parent at the end of life, their end of life levels of emotional distress, and the participant's perceptions of whether their parent experienced a "good death". Third, if a participant has experienced a spousal or parental death in the past 6 months, we no longer refrain from asking them the end of life death reactions questions (as was the case during the 2004 collection wave). Fourth and finally, we no longer only focus on spousal deaths that have occurred within the 10 years prior to the participant's interview. For participant's who were not interviewed during the 2004 collection wave, questions will be asked about spousal deaths occurring as far back as 1992 (the first year in which interviews were conducted for the 1993 collection wave). See cor853 in Appendix U for variable creation details. BRIEF VARIABLE DESCRIPTIONS _____________________________________________________________________ HELDSTAT-HELDREL: Module-Level Status Variables. HY201REC-HY700REC: Decedent Identification Variables (Relationship to Participant, Time Elapsed Between Death and Interview Date) HY218RE-HY234RE: Circumstances Surrounding Spouse's Death HY235RE-HY258RE: Changes in Participant's Financial Situation Due to Death of Spouse HY401RE-HY419RE: Circumstances Surrounding Parent's Death
heldstat: Was the End of Life Death Reactions Module completed by Participant alone, with help, or by proxy?
Data source: Graduate Participant or Proxy
Collected in: 2011
Mode: In person & telephone
Source variables: y_eldproxy1, y_eldhelp0, capiproxy, y_proxy, y_ivwloc
Frequencies | ||||
---|---|---|---|---|
Value | Label | Male | Female | Total |
. | System missing - NR | 2146 | 2019 | 4165 |
-30 | NOT PART OF MOSAQ | 68 | 116 | 184 |
-27 | NOT ASKED OF PROXY | 14 | 16 | 30 |
-5 | PARTIAL INTERVIEW | 7 | 2 | 9 |
1 | R COMPLETED ALONE | 2472 | 3020 | 5492 |
2 | R COMPLETED ALONE WITH SOMEONE ELSE IN THE ROOM | 246 | 141 | 387 |
3 | R RECEIVED A LITTLE HELP | 32 | 9 | 41 |
4 | R RECEIVED A LOT OF HELP | 6 | 3 | 9 |
heldrel: Relationship of End of Life Death Reactions Module helper or proxy to Participant.
Data source: Graduate Participant or Proxy
Collected in: 2011
Mode: In person & telephone
Source variables: HELDSTAT, y_eldproxy1, y_eldhelp0, y_eldhelp1, y_eldhelp2_hfn, y_eldhelp3, y_h1fn-y_h4fn, y_pfn, prxyfnam, y_p1fn-y_p5fn, y_prel, prxyrel, y_p1rel-y_p5rel
Frequencies | ||||
---|---|---|---|---|
Value | Label | Male | Female | Total |
. | System missing - NR | 2146 | 2019 | 4165 |
-30 | NOT PART OF MOSAQ | 68 | 116 | 184 |
-27 | NOT ASKED OF PROXY | 14 | 16 | 30 |
-5 | PARTIAL INTERVIEW | 7 | 2 | 9 |
-4 | NOT ASCERTAINED | 1 | 0 | 1 |
-2 | 2718 | 3161 | 5879 | |
0 | SPOUSE | 36 | 10 | 46 |
30 | GRANDSON | 0 | 1 | 1 |
41 | ROMANTIC PARTNER | 1 | 0 | 1 |
48 | SON | 0 | 1 | 1 |
hy201rec: Whose death is the Participant answering questions about?
Data source: Graduate Participant or Proxy
Collected in: 2011
Mode: In person & telephone
Source variables: y_deadsp1, y_deadsp10, y_deadmom, y_deaddad, y_ANYR, y_eoldck1
Frequencies | ||||
---|---|---|---|---|
Value | Label | Male | Female | Total |
. | System missing - NR | 2146 | 2019 | 4165 |
-30 | NOT PART OF MOSAQ | 68 | 116 | 184 |
-27 | NOT ASKED OF PROXY | 14 | 16 | 30 |
-5 | PARTIAL INTERVIEW | 7 | 2 | 9 |
-2 | 2180 | 2351 | 4531 | |
1 | SPOUSE'S DEATH SINCE LAST INTV IN 200x | 91 | 252 | 343 |
2 | SPOUSE'S DEATH SINCE LAST INTV IN 199x | 14 | 41 | 55 |
3 | SPOUSE'S DEATH WITHIN PAST 10 YEARS, NOT REPORTED IN 200x (SEE NOTE) | 1 | 0 | 1 |
4 | FATHER'S DEATH SINCE LAST INTV IN 200x | 104 | 128 | 232 |
5 | FATHER'S DEATH WITHIN PAST 10 YEARS | 15 | 15 | 30 |
6 | MOTHER'S DEATH SINCE LAST INTV IN 200x | 308 | 355 | 663 |
7 | MOTHER'S DEATH WITHIN PAST 10 YEARS | 43 | 31 | 74 |
hy202rec: Spouse roster ID number of decedent Participant is being interviewed about.
Data source: Graduate Participant or Proxy
Collected in: 2011
Mode: In person & telephone
Source variables: HY201REC, y_CINDEX, y_deadsp1, y_deadsp10
Frequencies | ||||
---|---|---|---|---|
Value | Label | Male | Female | Total |
. | System missing - NR | 2146 | 2019 | 4165 |
-30 | NOT PART OF MOSAQ | 68 | 116 | 184 |
-27 | NOT ASKED OF PROXY | 14 | 16 | 30 |
-5 | PARTIAL INTERVIEW | 7 | 2 | 9 |
-2 | 2650 | 2880 | 5530 | |
201 | 106 | 292 | 398 | |
202 | 0 | 1 | 1 |
hy700rec: Century-months elapsed between decedent's death and Participant's 2010 interview.
Data source: Graduate Participant or Proxy
Collected in: 2011
Mode: In person & telephone
Source variables: HY201REC, y_CMDATE, y_spousecm, y_dadcm, y_momcm
Frequencies | ||||
---|---|---|---|---|
Value | Label | Male | Female | Total |
. | System missing - NR | 2146 | 2019 | 4165 |
-30 | NOT PART OF MOSAQ | 68 | 116 | 184 |
-27 | NOT ASKED OF PROXY | 14 | 16 | 30 |
-5 | PARTIAL INTERVIEW | 7 | 2 | 9 |
-4 | NOT ASCERTAINED | 21 | 13 | 34 |
-2 | 2180 | 2351 | 4531 | |
0 - 21 | 100 | 181 | 281 | |
22 - 36 | 120 | 167 | 287 | |
37 - 54 | 121 | 161 | 282 | |
55 - 72 | 126 | 159 | 285 | |
73 - 225 | 88 | 141 | 229 |
hy218re: Numeric component for 'How long before your spouse's death did you realize that he/she was soon going to die?'
Data source: Graduate Participant or Proxy
Collected in: 2011
Mode: In person & telephone
Source variables: HY201REC, y_was3_a
Frequencies | ||||
---|---|---|---|---|
Value | Label | Male | Female | Total |
. | System missing - NR | 2146 | 2019 | 4165 |
-30 | NOT PART OF MOSAQ | 68 | 116 | 184 |
-27 | NOT ASKED OF PROXY | 14 | 16 | 30 |
-5 | PARTIAL INTERVIEW | 7 | 2 | 9 |
-4 | NOT ASCERTAINED | 0 | 1 | 1 |
-3 | REFUSED | 1 | 3 | 4 |
-2 | 2650 | 2880 | 5530 | |
-1 | DON'T KNOW | 2 | 13 | 15 |
0 | NO WARNING - SUDDEN DEATH | 21 | 65 | 86 |
1 | 19 | 54 | 73 | |
2 | 14 | 54 | 68 | |
3 - 5 | 22 | 53 | 75 | |
6 - 11 | 19 | 39 | 58 | |
14 - 91 | 8 | 11 | 19 |
hy219re: Time units corresponding to numeric component for 'How long before your spouse's death did you realize that he/she was soon going to die?'
Data source: Graduate Participant or Proxy
Collected in: 2011
Mode: In person & telephone
Source variables: HY201REC, y_was3_a, y_was3_b
Frequencies | ||||
---|---|---|---|---|
Value | Label | Male | Female | Total |
. | System missing - NR | 2146 | 2019 | 4165 |
-30 | NOT PART OF MOSAQ | 68 | 116 | 184 |
-27 | NOT ASKED OF PROXY | 14 | 16 | 30 |
-5 | PARTIAL INTERVIEW | 7 | 2 | 9 |
-2 | 2674 | 2962 | 5636 | |
1 | DAYS | 14 | 38 | 52 |
2 | WEEKS | 10 | 46 | 56 |
3 | MONTHS | 33 | 87 | 120 |
4 | YEARS | 25 | 40 | 65 |
hy220sp: Where did your deceased spouse spend the last few days of his/her life?
Data source: Graduate Participant or Proxy
Collected in: 2011
Mode: In person & telephone
Source variables: HY201REC, y_was4, c_y_was4
Frequencies | ||||
---|---|---|---|---|
Value | Label | Male | Female | Total |
. | System missing - NR | 2146 | 2019 | 4165 |
-30 | NOT PART OF MOSAQ | 68 | 116 | 184 |
-27 | NOT ASKED OF PROXY | 14 | 16 | 30 |
-5 | PARTIAL INTERVIEW | 7 | 2 | 9 |
-4 | NOT ASCERTAINED | 10 | 10 | 20 |
-3 | REFUSED | 1 | 3 | 4 |
-2 | 2650 | 2880 | 5530 | |
-1 | DON'T KNOW | 0 | 1 | 1 |
1 | HOME (INCLUDING FAMILY MEMBER'S HOME) | 36 | 113 | 149 |
2 | HOSPITAL | 33 | 90 | 123 |
3 | HOSPITAL HOSPICE OR OTHER HOSPICE NOT IN-HOME | 14 | 28 | 42 |
4 | IN-HOME HOSPICE | 4 | 17 | 21 |
5 | NURSING HOME, ASSISTED LIVING, LONG-TERM CARE | 8 | 27 | 35 |
9 | DOING RECREATIONAL ACTIVITY OR OUTDOORS | 0 | 1 | 1 |
10 | OTHER | 0 | 2 | 2 |
12 | AT WORK OR WHILE WORKING | 0 | 1 | 1 |
hy221sp: During the last week of your deceased spouse's life, how much pain did he/she experience?
Data source: Graduate Participant or Proxy
Collected in: 2011
Mode: In person & telephone
Source variables: HY201REC, y_was5
Frequencies | ||||
---|---|---|---|---|
Value | Label | Male | Female | Total |
. | System missing - NR | 2146 | 2019 | 4165 |
-30 | NOT PART OF MOSAQ | 68 | 116 | 184 |
-27 | NOT ASKED OF PROXY | 14 | 16 | 30 |
-5 | PARTIAL INTERVIEW | 7 | 2 | 9 |
-4 | NOT ASCERTAINED | 0 | 1 | 1 |
-3 | REFUSED | 1 | 4 | 5 |
-2 | 2650 | 2880 | 5530 | |
-1 | DON'T KNOW | 7 | 33 | 40 |
1 | NO PAIN | 36 | 87 | 123 |
2 | SLIGHT PAIN | 15 | 40 | 55 |
3 | MODERATE PAIN | 19 | 60 | 79 |
4 | SEVERE PAIN | 27 | 61 | 88 |
5 | NO PAIN, DEATH WAS SUDDEN | 1 | 7 | 8 |
hy222sp: Numeric component for 'How long before your spouse's death did he/she realize that he/she was soon going to die?'
Data source: Graduate Participant or Proxy
Collected in: 2011
Mode: In person & telephone
Source variables: HY201REC, y_wbs1_a
Frequencies | ||||
---|---|---|---|---|
Value | Label | Male | Female | Total |
. | System missing - NR | 2146 | 2019 | 4165 |
-30 | NOT PART OF MOSAQ | 68 | 116 | 184 |
-27 | NOT ASKED OF PROXY | 14 | 16 | 30 |
-5 | PARTIAL INTERVIEW | 7 | 2 | 9 |
-4 | NOT ASCERTAINED | 0 | 1 | 1 |
-3 | REFUSED | 1 | 4 | 5 |
-2 | 2650 | 2880 | 5530 | |
-1 | DON'T KNOW | 11 | 59 | 70 |
0 | NO WARNING - SUDDEN DEATH | 18 | 51 | 69 |
1 | 15 | 50 | 65 | |
2 | 11 | 31 | 42 | |
2.50 | 1 | 0 | 1 | |
3 | 13 | 18 | 31 | |
4 | 4 | 14 | 18 | |
5 | 2 | 9 | 11 | |
6 | 8 | 23 | 31 | |
7 | 2 | 3 | 5 | |
8 | 1 | 1 | 2 | |
9 | 2 | 0 | 2 | |
11 | 0 | 1 | 1 | |
14 | 2 | 1 | 3 | |
18 | 1 | 2 | 3 | |
19 | 0 | 1 | 1 | |
22 | 0 | 1 | 1 | |
30 | 2 | 0 | 2 | |
77 | 1 | 0 | 1 | |
90 | 0 | 1 | 1 | |
99 | NOT COGNITIVELY AWARE | 11 | 22 | 33 |
hy223sp: Time units corresponding to numeric component for 'How long before your spouse's death did he/she realize that he/she was soon going to die?'
Data source: Graduate Participant or Proxy
Collected in: 2011
Mode: In person & telephone
Source variables: HY201REC, y_wbs1_a, y_wbs1_b
Frequencies | ||||
---|---|---|---|---|
Value | Label | Male | Female | Total |
. | System missing - NR | 2146 | 2019 | 4165 |
-30 | NOT PART OF MOSAQ | 68 | 116 | 184 |
-27 | NOT ASKED OF PROXY | 14 | 16 | 30 |
-5 | PARTIAL INTERVIEW | 7 | 2 | 9 |
-2 | 2691 | 3017 | 5708 | |
1 | DAYS | 12 | 31 | 43 |
2 | WEEKS | 11 | 39 | 50 |
3 | MONTHS | 25 | 69 | 94 |
4 | YEARS | 17 | 17 | 34 |
hy224sp: Did you and your spouse ever talk about how you would deal with being on your own once he/she was gone?
Data source: Graduate Participant or Proxy
Collected in: 2011
Mode: In person & telephone
Source variables: HY201REC, y_wbs3
Frequencies | ||||
---|---|---|---|---|
Value | Label | Male | Female | Total |
. | System missing - NR | 2146 | 2019 | 4165 |
-30 | NOT PART OF MOSAQ | 68 | 116 | 184 |
-27 | NOT ASKED OF PROXY | 14 | 16 | 30 |
-5 | PARTIAL INTERVIEW | 7 | 2 | 9 |
-4 | NOT ASCERTAINED | 0 | 1 | 1 |
-3 | REFUSED | 1 | 4 | 5 |
-2 | 2650 | 2880 | 5530 | |
-1 | DON'T KNOW | 0 | 3 | 3 |
1 | YES | 40 | 125 | 165 |
2 | NO | 65 | 160 | 225 |
hy225sp: Did your deceased spouse have a signed Durable Power of Attorney for Health Care, naming someone who could make decisions about his/her medical treatment?
Data source: Graduate Participant or Proxy
Collected in: 2011
Mode: In person & telephone
Source variables: HY201REC, y_wcs1
Frequencies | ||||
---|---|---|---|---|
Value | Label | Male | Female | Total |
. | System missing - NR | 2146 | 2019 | 4165 |
-30 | NOT PART OF MOSAQ | 68 | 116 | 184 |
-27 | NOT ASKED OF PROXY | 14 | 16 | 30 |
-5 | PARTIAL INTERVIEW | 7 | 2 | 9 |
-4 | NOT ASCERTAINED | 0 | 1 | 1 |
-3 | REFUSED | 1 | 3 | 4 |
-2 | 2650 | 2880 | 5530 | |
-1 | DON'T KNOW | 1 | 7 | 8 |
1 | YES | 70 | 198 | 268 |
2 | NO | 34 | 84 | 118 |
hy726sp: Who held your deceased spouse's Durable Power of Attorney for Health Care?
Data source: Graduate Participant or Proxy
Collected in: 2011
Mode: In person & telephone
Source variables: HY201REC, y_wcs1, y_wcs1a, c_y_wcs1a
Frequencies | ||||
---|---|---|---|---|
Value | Label | Male | Female | Total |
. | System missing - NR | 2146 | 2019 | 4165 |
-30 | NOT PART OF MOSAQ | 68 | 116 | 184 |
-27 | NOT ASKED OF NON-SPOUSE PROXY | 14 | 16 | 30 |
-5 | PARTIAL INTERVIEW | 7 | 2 | 9 |
-2 | 2686 | 2975 | 5661 | |
-1 | DON'T KNOW | 1 | 3 | 4 |
1 | SPOUSE | 59 | 180 | 239 |
2 | SPOUSE AND CHILD/CHILDREN | 1 | 1 | 2 |
3 | BROTHER OR SISTER (INCLUDING IN-LAWS) | 1 | 1 | 2 |
14 | CHILD/CHILD-IN-LAW/GRANDCHILD (M OR F) | 3 | 7 | 10 |
120 | PHYSICIAN/HEALTHCARE PROFESSIONAL | 3 | 4 | 7 |
132 | ATTORNEY/LAWYER | 2 | 2 | 4 |
hy227sp: What role did the Durable Power of Attorney for Health Care appointment play in the last week of your deceased spouse's life?
Data source: Graduate Participant or Proxy
Collected in: 2011
Mode: In person & telephone
Source variables: HY201REC, HY225SP, y_wcs2
Frequencies | ||||
---|---|---|---|---|
Value | Label | Male | Female | Total |
. | System missing - NR | 2146 | 2019 | 4165 |
-30 | NOT PART OF MOSAQ | 68 | 116 | 184 |
-27 | NOT ASKED OF PROXY | 14 | 16 | 30 |
-5 | PARTIAL INTERVIEW | 7 | 2 | 9 |
-2 | 2686 | 2975 | 5661 | |
-1 | DON'T KNOW | 0 | 1 | 1 |
1 | IT HELPED A GREAT DEAL | 12 | 59 | 71 |
2 | IT HELPED A LITTLE | 8 | 15 | 23 |
3 | IT HAD NO EFFECT | 47 | 118 | 165 |
4 | IT CAUSED SOME PROBLEMS | 2 | 4 | 6 |
5 | IT CAUSED MAJOR PROBLEMS | 1 | 1 | 2 |
hy228sp: Did your deceased spouse have a signed Living Will, giving directions for the kind of medical treatment he/she wanted?
Data source: Graduate Participant or Proxy
Collected in: 2011
Mode: In person & telephone
Source variables: HY201REC, y_wcs3
Frequencies | ||||
---|---|---|---|---|
Value | Label | Male | Female | Total |
. | System missing - NR | 2146 | 2019 | 4165 |
-30 | NOT PART OF MOSAQ | 68 | 116 | 184 |
-27 | NOT ASKED OF PROXY | 14 | 16 | 30 |
-5 | PARTIAL INTERVIEW | 7 | 2 | 9 |
-4 | NOT ASCERTAINED | 0 | 1 | 1 |
-3 | REFUSED | 1 | 4 | 5 |
-2 | 2650 | 2880 | 5530 | |
-1 | DON'T KNOW | 2 | 8 | 10 |
1 | YES | 64 | 196 | 260 |
2 | NO | 39 | 84 | 123 |
hy229sp: What role did the Living Will play in the last week of your deceased spouse's life?
Data source: Graduate Participant or Proxy
Collected in: 2011
Mode: In person & telephone
Source variables: HY201REC, y_wcs3, y_wcs4
Frequencies | ||||
---|---|---|---|---|
Value | Label | Male | Female | Total |
. | System missing - NR | 2146 | 2019 | 4165 |
-30 | NOT PART OF MOSAQ | 68 | 116 | 184 |
-27 | NOT ASKED OF PROXY | 14 | 16 | 30 |
-5 | PARTIAL INTERVIEW | 7 | 2 | 9 |
-2 | 2692 | 2977 | 5669 | |
-1 | DON'T KNOW | 1 | 2 | 3 |
1 | IT HELPED A GREAT DEAL | 11 | 66 | 77 |
2 | IT HELPED A LITTLE | 11 | 21 | 32 |
3 | IT HAD NO EFFECT | 41 | 104 | 145 |
4 | IT CAUSED SOME PROBLEMS | 0 | 3 | 3 |
hy230sp: Was your deceased spouse able to make decisions in the last week of his/her life?
Data source: Graduate Participant or Proxy
Collected in: 2011
Mode: In person & telephone
Source variables: HY201REC, y_wcs5
Frequencies | ||||
---|---|---|---|---|
Value | Label | Male | Female | Total |
. | System missing - NR | 2146 | 2019 | 4165 |
-30 | NOT PART OF MOSAQ | 68 | 116 | 184 |
-27 | NOT ASKED OF PROXY | 14 | 16 | 30 |
-5 | PARTIAL INTERVIEW | 7 | 2 | 9 |
-4 | NOT ASCERTAINED | 0 | 1 | 1 |
-3 | REFUSED | 1 | 4 | 5 |
-2 | 2650 | 2880 | 5530 | |
-1 | DON'T KNOW | 1 | 6 | 7 |
1 | YES | 43 | 160 | 203 |
2 | NO | 61 | 122 | 183 |
hy231sp: Did your deceased spouse have specific wishes or plans about the types of medical treatment he/she did or did not want while dying?
Data source: Graduate Participant or Proxy
Collected in: 2011
Mode: In person & telephone
Source variables: HY201REC, y_wcs6
Frequencies | ||||
---|---|---|---|---|
Value | Label | Male | Female | Total |
. | System missing - NR | 2146 | 2019 | 4165 |
-30 | NOT PART OF MOSAQ | 68 | 116 | 184 |
-27 | NOT ASKED OF PROXY | 14 | 16 | 30 |
-5 | PARTIAL INTERVIEW | 7 | 2 | 9 |
-4 | NOT ASCERTAINED | 0 | 1 | 1 |
-3 | REFUSED | 1 | 4 | 5 |
-2 | 2650 | 2880 | 5530 | |
-1 | DON'T KNOW | 1 | 9 | 10 |
1 | YES | 61 | 160 | 221 |
2 | NO | 43 | 119 | 162 |
hy232sp: Did the doctor or medical staff who cared for your deceased spouse speak to your spouse or you about making sure his/her care was consistent with his/her previously stated wishes or plans about the types of medical treatment he/she did or did not want while dying?
Data source: Graduate Participant or Proxy
Collected in: 2011
Mode: In person & telephone
Source variables: HY201REC, HY231SP, y_wcs7
Frequencies | ||||
---|---|---|---|---|
Value | Label | Male | Female | Total |
. | System missing - NR | 2146 | 2019 | 4165 |
-30 | NOT PART OF MOSAQ | 68 | 116 | 184 |
-27 | NOT ASKED OF PROXY | 14 | 16 | 30 |
-5 | PARTIAL INTERVIEW | 7 | 2 | 9 |
-4 | NOT ASCERTAINED | 10 | 27 | 37 |
-2 | 2695 | 3013 | 5708 | |
-1 | DON'T KNOW | 1 | 5 | 6 |
1 | YES | 42 | 102 | 144 |
2 | NO | 8 | 23 | 31 |
3 | SUDDEN DEATH/INAP | 0 | 3 | 3 |
hy233sp: During that last week of your deceased spouse's life, was there any medical procedure or treatment that happened to your spouse that was not consistent with his/her previously stated wishes or plans about the types of medical treatment he/she did or did not want while dying?
Data source: Graduate Participant or Proxy
Collected in: 2011
Mode: In person & telephone
Source variables: HY201REC, HY231SP, HY232SP, y_wcs8
Frequencies | ||||
---|---|---|---|---|
Value | Label | Male | Female | Total |
. | System missing - NR | 2146 | 2019 | 4165 |
-30 | NOT PART OF MOSAQ | 68 | 116 | 184 |
-27 | NOT ASKED OF PROXY | 14 | 16 | 30 |
-5 | PARTIAL INTERVIEW | 7 | 2 | 9 |
-2 | 2714 | 3068 | 5782 | |
-1 | DON'T KNOW | 0 | 1 | 1 |
1 | YES | 2 | 8 | 10 |
2 | NO | 40 | 94 | 134 |
3 | SUDDEN DEATH/INAP | 0 | 2 | 2 |
hy234re: To pay the expenses associated with your deceased spouse's illness and death, did you have to sell assets, withdraw money that would otherwise not be touched, get help from a relative, or do anything else special to find the money?
Data source: Graduate Participant or Proxy
Collected in: 2011
Mode: In person & telephone
Source variables: HY201REC, y_wds2
Frequencies | ||||
---|---|---|---|---|
Value | Label | Male | Female | Total |
. | System missing - NR | 2146 | 2019 | 4165 |
-30 | NOT PART OF MOSAQ | 68 | 116 | 184 |
-27 | NOT ASKED OF PROXY | 14 | 16 | 30 |
-5 | PARTIAL INTERVIEW | 7 | 2 | 9 |
-4 | NOT ASCERTAINED | 0 | 1 | 1 |
-3 | REFUSED | 2 | 4 | 6 |
-2 | 2650 | 2880 | 5530 | |
-1 | DON'T KNOW | 1 | 2 | 3 |
1 | YES | 24 | 53 | 77 |
2 | NO | 79 | 233 | 312 |
hy235re: Did any income you receive from retirement pensions or annuities start, stop, or change because of your spouse's death?
Data source: Graduate Participant or Proxy
Collected in: 2011
Mode: In person & telephone
Source variables: HY201REC, y_wds4
Frequencies | ||||
---|---|---|---|---|
Value | Label | Male | Female | Total |
. | System missing - NR | 2146 | 2019 | 4165 |
-30 | NOT PART OF MOSAQ | 68 | 116 | 184 |
-27 | NOT ASKED OF PROXY | 14 | 16 | 30 |
-5 | PARTIAL INTERVIEW | 7 | 2 | 9 |
-4 | NOT ASCERTAINED | 0 | 1 | 1 |
-3 | REFUSED | 2 | 4 | 6 |
-2 | 2650 | 2880 | 5530 | |
-1 | DON'T KNOW | 1 | 6 | 7 |
1 | YES | 38 | 142 | 180 |
2 | NO | 65 | 140 | 205 |
hy236re: Did your pension or annuity stop, start, increase or decrease as a result of your spouse's death?
Data source: Graduate Participant or Proxy
Collected in: 2011
Mode: In person & telephone
Source variables: HY201REC, HY235RE, y_wds5
Frequencies | ||||
---|---|---|---|---|
Value | Label | Male | Female | Total |
. | System missing - NR | 2146 | 2019 | 4165 |
-30 | NOT PART OF MOSAQ | 68 | 116 | 184 |
-27 | NOT ASKED OF PROXY | 14 | 16 | 30 |
-5 | PARTIAL INTERVIEW | 7 | 2 | 9 |
-2 | 2718 | 3031 | 5749 | |
-1 | DON'T KNOW | 1 | 7 | 8 |
1 | STOP | 22 | 50 | 72 |
2 | START | 2 | 12 | 14 |
3 | INCREASE | 4 | 3 | 7 |
4 | DECREASE | 9 | 70 | 79 |
hy237re: Numeric component for 'By how much did your total pension or annuity income increase/decrease as a result of your spouse's death?'
Data source: Graduate Participant or Proxy
Collected in: 2011
Mode: In person & telephone
Source variables: HY201REC, HY236RE, y_wds6_a
Frequencies | ||||
---|---|---|---|---|
Value | Label | Male | Female | Total |
. | System missing - NR | 2146 | 2019 | 4165 |
-30 | NOT PART OF MOSAQ | 68 | 116 | 184 |
-27 | NOT ASKED OF PROXY | 14 | 16 | 30 |
-5 | PARTIAL INTERVIEW | 7 | 2 | 9 |
-3 | REFUSED | 0 | 1 | 1 |
-2 | 2743 | 3100 | 5843 | |
-1 | DON'T KNOW | 2 | 10 | 12 |
10 - 50 | 3 | 23 | 26 | |
55 - 362 | 3 | 11 | 14 | |
450 - 800 | 2 | 14 | 16 | |
1000 - 8500 | 2 | 12 | 14 | |
15000 - 20000 | 1 | 2 | 3 |
hy238re: Units corresponding to numeric component for 'By how much did your total pension or annuity income increase/decrease as a result of your spouse's death?'
Data source: Graduate Participant or Proxy
Collected in: 2011
Mode: In person & telephone
Source variables: HY201REC, HY237RE, y_wds6_a, y_wds6_b, c_y_wds6_b
Frequencies | ||||
---|---|---|---|---|
Value | Label | Male | Female | Total |
. | System missing - NR | 2146 | 2019 | 4165 |
-30 | NOT PART OF MOSAQ | 68 | 116 | 184 |
-27 | NOT ASKED OF PROXY | 14 | 16 | 30 |
-5 | PARTIAL INTERVIEW | 7 | 2 | 9 |
-4 | NOT ASCERTAINED | 0 | 1 | 1 |
-2 | 2745 | 3111 | 5856 | |
1 | PER MONTH | 5 | 36 | 41 |
2 | PER YEAR | 2 | 2 | 4 |
3 | AS A PERCENTAGE OF PAY | 3 | 23 | 26 |
4 | AS A LUMP SUM | 1 | 0 | 1 |
hy239re: Did the type, cost, or coverage of your health insurance change as a result of your spouse's death?
Data source: Graduate Participant or Proxy
Collected in: 2011
Mode: In person & telephone
Source variables: HY201REC, y_wds7
Frequencies | ||||
---|---|---|---|---|
Value | Label | Male | Female | Total |
. | System missing - NR | 2146 | 2019 | 4165 |
-30 | NOT PART OF MOSAQ | 68 | 116 | 184 |
-27 | NOT ASKED OF PROXY | 14 | 16 | 30 |
-5 | PARTIAL INTERVIEW | 7 | 2 | 9 |
-4 | NOT ASCERTAINED | 0 | 1 | 1 |
-3 | REFUSED | 1 | 4 | 5 |
-2 | 2650 | 2880 | 5530 | |
-1 | DON'T KNOW | 0 | 5 | 5 |
1 | YES | 30 | 71 | 101 |
2 | NO | 75 | 212 | 287 |
hy240rec: Total number of changes to Participant's health insurance type, cost, or coverage as a result of spouse's death.
Data source: Graduate Participant or Proxy
Collected in: 2011
Mode: In person & telephone
Source variables: HY201REC, HY239RE, y_wds8_:a-f, c_y_wds8_:a-f
Frequencies | ||||
---|---|---|---|---|
Value | Label | Male | Female | Total |
. | System missing - NR | 2146 | 2019 | 4165 |
-30 | NOT PART OF MOSAQ | 68 | 116 | 184 |
-27 | NOT ASKED OF PROXY | 14 | 16 | 30 |
-5 | PARTIAL INTERVIEW | 7 | 2 | 9 |
-4 | NOT ASCERTAINED | 1 | 2 | 3 |
-2 | 2726 | 3102 | 5828 | |
1 | 22 | 49 | 71 | |
2 | 6 | 16 | 22 | |
3 | 1 | 1 | 2 | |
4 | 0 | 1 | 1 | |
5 | 0 | 2 | 2 |
hy241rec: Did you lose your health insurance plan as a result of your spouse's death?
Data source: Graduate Participant or Proxy
Collected in: 2011
Mode: In person & telephone
Source variables: HY201REC, HY239RE, y_wds8_:a-f, c_y_wds8_:a-f
Frequencies | ||||
---|---|---|---|---|
Value | Label | Male | Female | Total |
. | System missing - NR | 2146 | 2019 | 4165 |
-30 | NOT PART OF MOSAQ | 68 | 116 | 184 |
-27 | NOT ASKED OF PROXY | 14 | 16 | 30 |
-5 | PARTIAL INTERVIEW | 7 | 2 | 9 |
-4 | NOT ASCERTAINED | 1 | 2 | 3 |
-2 | 2726 | 3102 | 5828 | |
1 | YES | 0 | 10 | 10 |
2 | NO | 29 | 59 | 88 |
hy242rec: Did you have to switch to an individual health insurance plan as a result of your spouse's death?
Data source: Graduate Participant or Proxy
Collected in: 2011
Mode: In person & telephone
Source variables: HY201REC, HY239RE, y_wds8_:a-f, c_y_wds8_:a-f
Frequencies | ||||
---|---|---|---|---|
Value | Label | Male | Female | Total |
. | System missing - NR | 2146 | 2019 | 4165 |
-30 | NOT PART OF MOSAQ | 68 | 116 | 184 |
-27 | NOT ASKED OF PROXY | 14 | 16 | 30 |
-5 | PARTIAL INTERVIEW | 7 | 2 | 9 |
-4 | NOT ASCERTAINED | 1 | 2 | 3 |
-2 | 2726 | 3102 | 5828 | |
1 | YES | 8 | 27 | 35 |
2 | NO | 21 | 42 | 63 |
hy243rec: Did the costs associated with your health insurance plan change as a result of your spouse's death?
Data source: Graduate Participant or Proxy
Collected in: 2011
Mode: In person & telephone
Source variables: HY201REC, HY239RE, y_wds8_:a-f, c_y_wds8_:a-f
Frequencies | ||||
---|---|---|---|---|
Value | Label | Male | Female | Total |
. | System missing - NR | 2146 | 2019 | 4165 |
-30 | NOT PART OF MOSAQ | 68 | 116 | 184 |
-27 | NOT ASKED OF PROXY | 14 | 16 | 30 |
-5 | PARTIAL INTERVIEW | 7 | 2 | 9 |
-4 | NOT ASCERTAINED | 1 | 2 | 3 |
-2 | 2726 | 3102 | 5828 | |
1 | YES, COSTS BECAME HIGHER | 2 | 8 | 10 |
2 | YES, COSTS BECAME LOWER | 23 | 36 | 59 |
3 | NO, COSTS DID NOT CHANGE | 4 | 25 | 29 |
hy244rec: Did the services provided by your health insurance plan change as a result of your spouse's death?
Data source: Graduate Participant or Proxy
Collected in: 2011
Mode: In person & telephone
Source variables: HY201REC, HY239RE, y_wds8_:a-f, c_y_wds8_:a-f
Frequencies | ||||
---|---|---|---|---|
Value | Label | Male | Female | Total |
. | System missing - NR | 2146 | 2019 | 4165 |
-30 | NOT PART OF MOSAQ | 68 | 116 | 184 |
-27 | NOT ASKED OF PROXY | 14 | 16 | 30 |
-5 | PARTIAL INTERVIEW | 7 | 2 | 9 |
-4 | NOT ASCERTAINED | 1 | 2 | 3 |
-2 | 2726 | 3102 | 5828 | |
1 | YES, FEWER SERVICES COVERED | 0 | 5 | 5 |
2 | YES, MORE SERVICES COVERED | 1 | 0 | 1 |
3 | NO, SERVICES COVERED DID NOT CHANGE | 28 | 64 | 92 |
hy245re: What changed about your health insurance as a result of your spouse's death - first response?
Data source: Graduate Participant or Proxy
Collected in: 2011
Mode: In person & telephone
Source variables: HY201REC, HY239RE, y_wds8_a, c_y_wds8_a
Frequencies | ||||
---|---|---|---|---|
Value | Label | Male | Female | Total |
. | System missing - NR | 2146 | 2019 | 4165 |
-30 | NOT PART OF MOSAQ | 68 | 116 | 184 |
-27 | NOT ASKED OF PROXY | 14 | 16 | 30 |
-5 | PARTIAL INTERVIEW | 7 | 2 | 9 |
-4 | NOT ASCERTAINED | 1 | 2 | 3 |
-2 | 2726 | 3102 | 5828 | |
1 | LOST HEALTH INSURANCE PLAN | 0 | 10 | 10 |
2 | HAD TO SWITCH TO INDIVIDUAL PLAN | 8 | 23 | 31 |
3 | COST BECAME HIGHER | 2 | 6 | 8 |
4 | COST BECAME LOWER | 18 | 24 | 42 |
5 | FEWER SERVICES COVERED | 0 | 2 | 2 |
10 | SWITCHED TO COBRA | 1 | 0 | 1 |
12 | CHANGED INSURANCE COMPANY, NO FURTHER SPECIFICATION | 0 | 3 | 3 |
13 | OTHER | 0 | 1 | 1 |
hy246re: What changed about your health insurance as a result of your spouse's death - second response?
Data source: Graduate Participant or Proxy
Collected in: 2011
Mode: In person & telephone
Source variables: HY201REC, HY239RE, y_wds8_b, c_y_wds8_b
Frequencies | ||||
---|---|---|---|---|
Value | Label | Male | Female | Total |
. | System missing - NR | 2146 | 2019 | 4165 |
-30 | NOT PART OF MOSAQ | 68 | 116 | 184 |
-27 | NOT ASKED OF PROXY | 14 | 16 | 30 |
-5 | PARTIAL INTERVIEW | 7 | 2 | 9 |
-2 | 2749 | 3153 | 5902 | |
2 | HAD TO SWITCH TO INDIVIDUAL PLAN | 0 | 4 | 4 |
3 | COST BECAME HIGHER | 0 | 2 | 2 |
4 | COST BECAME LOWER | 5 | 13 | 18 |
6 | MORE SERVICES COVERED | 1 | 0 | 1 |
8 | BECAME MORE CONVENIENT | 1 | 0 | 1 |
13 | OTHER | 0 | 1 | 1 |
hy247re: What changed about your health insurance as a result of your spouse's death - third response?
Data source: Graduate Participant or Proxy
Collected in: 2011
Mode: In person & telephone
Source variables: HY201REC, HY239RE, y_wds8_c, c_y_wds8_c
Frequencies | ||||
---|---|---|---|---|
Value | Label | Male | Female | Total |
. | System missing - NR | 2146 | 2019 | 4165 |
-30 | NOT PART OF MOSAQ | 68 | 116 | 184 |
-27 | NOT ASKED OF PROXY | 14 | 16 | 30 |
-5 | PARTIAL INTERVIEW | 7 | 2 | 9 |
-2 | 2755 | 3169 | 5924 | |
3 | COST BECAME HIGHER | 0 | 1 | 1 |
5 | FEWER SERVICES COVERED | 0 | 2 | 2 |
7 | MORE CHOICE OF PHYSICIANS | 1 | 1 | 2 |
hy248re: What changed about your health insurance as a result of your spouse's death - fourth response?
Data source: Graduate Participant or Proxy
Collected in: 2011
Mode: In person & telephone
Source variables: HY201REC, HY239RE, y_wds8_d, c_y_wds8_d
Frequencies | ||||
---|---|---|---|---|
Value | Label | Male | Female | Total |
. | System missing - NR | 2146 | 2019 | 4165 |
-30 | NOT PART OF MOSAQ | 68 | 116 | 184 |
-27 | NOT ASKED OF PROXY | 14 | 16 | 30 |
-5 | PARTIAL INTERVIEW | 7 | 2 | 9 |
-2 | 2756 | 3170 | 5926 | |
5 | FEWER SERVICES COVERED | 0 | 1 | 1 |
7 | MORE CHOICE OF PHYSICIANS | 0 | 2 | 2 |
hy249re: What changed about your health insurance as a result of your spouse's death - fifth response?
Data source: Graduate Participant or Proxy
Collected in: 2011
Mode: In person & telephone
Source variables: HY201REC, HY239RE, y_wds8_e, c_y_wds8_e
Frequencies | ||||
---|---|---|---|---|
Value | Label | Male | Female | Total |
. | System missing - NR | 2146 | 2019 | 4165 |
-30 | NOT PART OF MOSAQ | 68 | 116 | 184 |
-27 | NOT ASKED OF PROXY | 14 | 16 | 30 |
-5 | PARTIAL INTERVIEW | 7 | 2 | 9 |
-2 | 2756 | 3171 | 5927 | |
3 | COST BECAME HIGHER | 0 | 1 | 1 |
8 | BECAME MORE CONVENIENT | 0 | 1 | 1 |
hy251sp: Not including Social Security or Railroad Retirement, when your spouse died, was he/she receiving or eligible to receive an employer provided pension?
Data source: Graduate Participant or Proxy
Collected in: 2011
Mode: In person & telephone
Source variables: HY201REC, y_wds9
Frequencies | ||||
---|---|---|---|---|
Value | Label | Male | Female | Total |
. | System missing - NR | 2146 | 2019 | 4165 |
-30 | NOT PART OF MOSAQ | 68 | 116 | 184 |
-27 | NOT ASKED OF PROXY | 14 | 16 | 30 |
-5 | PARTIAL INTERVIEW | 7 | 2 | 9 |
-4 | NOT ASCERTAINED | 0 | 1 | 1 |
-3 | REFUSED | 1 | 4 | 5 |
-2 | 2650 | 2880 | 5530 | |
-1 | DON'T KNOW | 0 | 6 | 6 |
1 | YES | 21 | 142 | 163 |
2 | NO | 84 | 140 | 224 |
hy252re: Did you receive a lump sum settlement or do you expect to receive a periodically paid survivor benefit from your deceased spouse's pension?
Data source: Graduate Participant or Proxy
Collected in: 2011
Mode: In person & telephone
Source variables: HY201REC, HY251SP, y_wds10, c_y_wds10
Frequencies | ||||
---|---|---|---|---|
Value | Label | Male | Female | Total |
. | System missing - NR | 2146 | 2019 | 4165 |
-30 | NOT PART OF MOSAQ | 68 | 116 | 184 |
-27 | NOT ASKED OF PROXY | 14 | 16 | 30 |
-5 | PARTIAL INTERVIEW | 7 | 2 | 9 |
-3 | REFUSED | 0 | 1 | 1 |
-2 | 2735 | 3031 | 5766 | |
-1 | DON'T KNOW | 0 | 2 | 2 |
1 | RECEIVED LUMP SUM SETTLEMENT | 3 | 15 | 18 |
2 | EXPECT TO RECEIVE PERIODICALLY PAID SURVIVOR BENEFIT | 14 | 101 | 115 |
3 | RECEIVED LUMP SUM SETTLEMENT AND ALSO PAID SURVIVOR BENEFIT | 1 | 1 | 2 |
5 | DID NOT RECEIVE ANY SETTLEMENT OR BENEFITS | 3 | 21 | 24 |
6 | OTHER | 0 | 1 | 1 |
hy253re: Numeric component for 'How much does the lump sum settlement or periodically paid survivor benefit from your deceased spouse's pension amount to?'
Data source: Graduate Participant or Proxy
Collected in: 2011
Mode: In person & telephone
Source variables: HY201REC, HY252RE, y_wds11_a
Frequencies | ||||
---|---|---|---|---|
Value | Label | Male | Female | Total |
. | System missing - NR | 2146 | 2019 | 4165 |
-30 | NOT PART OF MOSAQ | 68 | 116 | 184 |
-27 | NOT ASKED OF PROXY | 14 | 16 | 30 |
-5 | PARTIAL INTERVIEW | 7 | 2 | 9 |
-3 | REFUSED | 0 | 6 | 6 |
-2 | 2738 | 3052 | 5790 | |
-1 | DON'T KNOW | 2 | 16 | 18 |
10 - 286 | 1 | 22 | 23 | |
298 - 500 | 3 | 21 | 24 | |
540 - 934 | 6 | 17 | 23 | |
1000 - 1888 | 2 | 21 | 23 | |
2000 - 600007 | 4 | 18 | 22 |
hy254re: Units corresponding to numeric component for 'How much does the lump sum settlement or periodically paid survivor benefit from your deceased spouse's pension amount to?'
Data source: Graduate Participant or Proxy
Collected in: 2011
Mode: In person & telephone
Source variables: HY201REC, HY252RE, y_wds11_a, y_wds11_b, c_y_wds11_b
Frequencies | ||||
---|---|---|---|---|
Value | Label | Male | Female | Total |
. | System missing - NR | 2146 | 2019 | 4165 |
-30 | NOT PART OF MOSAQ | 68 | 116 | 184 |
-27 | NOT ASKED OF PROXY | 14 | 16 | 30 |
-5 | PARTIAL INTERVIEW | 7 | 2 | 9 |
-2 | 2740 | 3074 | 5814 | |
1 | PER MONTH | 11 | 86 | 97 |
2 | PER YEAR | 1 | 2 | 3 |
4 | AS A LUMP SUM | 4 | 10 | 14 |
5 | SOMETHING ELSE | 0 | 1 | 1 |
hy255re: Did you receive a life insurance settlement as a result of your spouse's death?
Data source: Graduate Participant or Proxy
Collected in: 2011
Mode: In person & telephone
Source variables: HY201REC, y_wds12
Frequencies | ||||
---|---|---|---|---|
Value | Label | Male | Female | Total |
. | System missing - NR | 2146 | 2019 | 4165 |
-30 | NOT PART OF MOSAQ | 68 | 116 | 184 |
-27 | NOT ASKED OF PROXY | 14 | 16 | 30 |
-5 | PARTIAL INTERVIEW | 7 | 2 | 9 |
-4 | NOT ASCERTAINED | 0 | 1 | 1 |
-3 | REFUSED | 1 | 3 | 4 |
-2 | 2650 | 2880 | 5530 | |
-1 | DON'T KNOW | 0 | 3 | 3 |
1 | YES | 56 | 192 | 248 |
2 | NO | 49 | 94 | 143 |
hy256re: How much did the life insurance settlement you received as a result of your spouse's death amount to?
Data source: Graduate Participant or Proxy
Collected in: 2011
Mode: In person & telephone
Source variables: HY201REC, HY255RE, y_wds13
Frequencies | ||||
---|---|---|---|---|
Value | Label | Male | Female | Total |
. | System missing - NR | 2146 | 2019 | 4165 |
-30 | NOT PART OF MOSAQ | 68 | 116 | 184 |
-27 | NOT ASKED OF PROXY | 14 | 16 | 30 |
-5 | PARTIAL INTERVIEW | 7 | 2 | 9 |
-3 | REFUSED | 3 | 19 | 22 |
-2 | 2700 | 2981 | 5681 | |
-1 | DON'T KNOW | 1 | 18 | 19 |
255 - 8000 | 11 | 30 | 41 | |
8500 - 14000 | 7 | 37 | 44 | |
15000 - 25000 | 18 | 29 | 47 | |
26000 - 50000 | 8 | 35 | 43 | |
54000 - 330000 | 8 | 24 | 32 |
hy257re: After your spouse's death, how did your financial situation change compared to when your spouse was alive?
Data source: Graduate Participant or Proxy
Collected in: 2011
Mode: In person & telephone
Source variables: HY201REC, y_wds14
Frequencies | ||||
---|---|---|---|---|
Value | Label | Male | Female | Total |
. | System missing - NR | 2146 | 2019 | 4165 |
-30 | NOT PART OF MOSAQ | 68 | 116 | 184 |
-27 | NOT ASKED OF PROXY | 14 | 16 | 30 |
-5 | PARTIAL INTERVIEW | 7 | 2 | 9 |
-4 | NOT ASCERTAINED | 0 | 1 | 1 |
-3 | REFUSED | 2 | 4 | 6 |
-2 | 2650 | 2880 | 5530 | |
-1 | DON'T KNOW | 0 | 3 | 3 |
1 | MUCH WORSE | 4 | 19 | 23 |
2 | SOMEWHAT WORSE | 11 | 82 | 93 |
3 | ABOUT THE SAME | 70 | 138 | 208 |
4 | SOMEWHAT BETTER | 14 | 34 | 48 |
5 | MUCH BETTER | 5 | 12 | 17 |
hy258re: After your spouse's death, was your financial position at that time about what you had expected?
Data source: Graduate Participant or Proxy
Collected in: 2011
Mode: In person & telephone
Source variables: HY201REC, y_wds15
Frequencies | ||||
---|---|---|---|---|
Value | Label | Male | Female | Total |
. | System missing - NR | 2146 | 2019 | 4165 |
-30 | NOT PART OF MOSAQ | 68 | 116 | 184 |
-27 | NOT ASKED OF PROXY | 14 | 16 | 30 |
-5 | PARTIAL INTERVIEW | 7 | 2 | 9 |
-4 | NOT ASCERTAINED | 0 | 1 | 1 |
-3 | REFUSED | 2 | 5 | 7 |
-2 | 2650 | 2880 | 5530 | |
-1 | DON'T KNOW | 1 | 5 | 6 |
1 | MUCH WORSE | 3 | 12 | 15 |
2 | SOMEWHAT WORSE | 9 | 44 | 53 |
3 | ABOUT THE SAME | 74 | 173 | 247 |
4 | SOMEWHAT BETTER | 13 | 35 | 48 |
5 | MUCH BETTER | 1 | 10 | 11 |
6 | HAD NO EXPECTATIONS (VOLUNTEERED) | 3 | 8 | 11 |
hy401re: Numeric component for 'How long before your parent's death did you realize that he/she was going to die?'
Data source: Graduate Participant or Proxy
Collected in: 2011
Mode: In person & telephone
Source variables: HY201REC, y_wap3_a
Frequencies | ||||
---|---|---|---|---|
Value | Label | Male | Female | Total |
. | System missing - NR | 2146 | 2019 | 4165 |
-30 | NOT PART OF MOSAQ | 68 | 116 | 184 |
-27 | NOT ASKED OF PROXY | 14 | 16 | 30 |
-5 | PARTIAL INTERVIEW | 7 | 2 | 9 |
-3 | REFUSED | 3 | 0 | 3 |
-2 | 2286 | 2644 | 4930 | |
-1 | DON'T KNOW | 17 | 18 | 35 |
0 | NO WARNING - SUDDEN DEATH | 75 | 82 | 157 |
1 | 108 | 130 | 238 | |
2 | 90 | 103 | 193 | |
3 - 5 | 82 | 102 | 184 | |
6 - 10 | 88 | 81 | 169 | |
12 - 99 | 7 | 13 | 20 |
hy402re: Time units corresponding to numeric component for 'How long before your parent's death did you realize that he/she was going to die?'
Data source: Graduate Participant or Proxy
Collected in: 2011
Mode: In person & telephone
Source variables: HY201REC, y_wap3_a, y_wap3_b
Frequencies | ||||
---|---|---|---|---|
Value | Label | Male | Female | Total |
. | System missing - NR | 2146 | 2019 | 4165 |
-30 | NOT PART OF MOSAQ | 68 | 116 | 184 |
-27 | NOT ASKED OF PROXY | 14 | 16 | 30 |
-5 | PARTIAL INTERVIEW | 7 | 2 | 9 |
-2 | 2381 | 2744 | 5125 | |
1 | DAYS | 60 | 73 | 133 |
2 | WEEKS | 72 | 92 | 164 |
3 | MONTHS | 150 | 173 | 323 |
4 | YEARS | 93 | 91 | 184 |
hy403pa: Where did your deceased parent spend the last few days of his/her life?
Data source: Graduate Participant or Proxy
Collected in: 2011
Mode: In person & telephone
Source variables: HY201REC, y_wap4, c_y_wap4
Frequencies | ||||
---|---|---|---|---|
Value | Label | Male | Female | Total |
. | System missing - NR | 2146 | 2019 | 4165 |
-30 | NOT PART OF MOSAQ | 68 | 116 | 184 |
-27 | NOT ASKED OF PROXY | 14 | 16 | 30 |
-5 | PARTIAL INTERVIEW | 7 | 2 | 9 |
-4 | NOT ASCERTAINED | 21 | 21 | 42 |
-3 | REFUSED | 2 | 0 | 2 |
-2 | 2286 | 2644 | 4930 | |
-1 | DON'T KNOW | 2 | 1 | 3 |
1 | HOME (INCLUDING FAMILY MEMBER'S HOME) | 68 | 74 | 142 |
2 | HOSPITAL | 74 | 77 | 151 |
3 | HOSPITAL HOSPICE OR OTHER HOSPICE NOT IN-HOME | 27 | 31 | 58 |
4 | IN-HOME HOSPICE | 6 | 11 | 17 |
5 | NURSING HOME, ASSISTED LIVING, LONG-TERM CARE | 269 | 314 | 583 |
13 | AT HOME OR HOSPICE | 1 | 0 | 1 |
hy404pa: During the last week of your deceased parent's life, how much pain did he/she experience?
Data source: Graduate Participant or Proxy
Collected in: 2011
Mode: In person & telephone
Source variables: HY201REC, y_wap5
Frequencies | ||||
---|---|---|---|---|
Value | Label | Male | Female | Total |
. | System missing - NR | 2146 | 2019 | 4165 |
-30 | NOT PART OF MOSAQ | 68 | 116 | 184 |
-27 | NOT ASKED OF PROXY | 14 | 16 | 30 |
-5 | PARTIAL INTERVIEW | 7 | 2 | 9 |
-3 | REFUSED | 2 | 0 | 2 |
-2 | 2286 | 2644 | 4930 | |
-1 | DON'T KNOW | 52 | 49 | 101 |
1 | NO PAIN | 183 | 200 | 383 |
2 | SLIGHT PAIN | 92 | 87 | 179 |
3 | MODERATE PAIN | 83 | 131 | 214 |
4 | SEVERE PAIN | 58 | 62 | 120 |
hy405pa: Numeric component for 'How long before your parent's death did he/she realize that he/she was going to die?'
Data source: Graduate Participant or Proxy
Collected in: 2011
Mode: In person & telephone
Source variables: HY201REC, y_wbp1_a
Frequencies | ||||
---|---|---|---|---|
Value | Label | Male | Female | Total |
. | System missing - NR | 2146 | 2019 | 4165 |
-30 | NOT PART OF MOSAQ | 68 | 116 | 184 |
-27 | NOT ASKED OF PROXY | 14 | 16 | 30 |
-5 | PARTIAL INTERVIEW | 7 | 2 | 9 |
-3 | REFUSED | 2 | 0 | 2 |
-2 | 2286 | 2644 | 4930 | |
-1 | DON'T KNOW | 140 | 133 | 273 |
0 | NO WARNING - SUDDEN DEATH | 60 | 92 | 152 |
1 | 81 | 84 | 165 | |
2 | 58 | 60 | 118 | |
2.50 - 5 | 41 | 65 | 106 | |
6 - 75 | 43 | 44 | 87 | |
99 | NOT COGNITIVELY AWARE | 45 | 51 | 96 |
hy406pa: Time units corresponding to numeric component for 'How long before your parent's death did he/she realize that he/she was going to die?'
Data source: Graduate Participant or Proxy
Collected in: 2011
Mode: In person & telephone
Source variables: HY201REC, y_wbp1_a, y_wbp1_b
Frequencies | ||||
---|---|---|---|---|
Value | Label | Male | Female | Total |
. | System missing - NR | 2146 | 2019 | 4165 |
-30 | NOT PART OF MOSAQ | 68 | 116 | 184 |
-27 | NOT ASKED OF PROXY | 14 | 16 | 30 |
-5 | PARTIAL INTERVIEW | 7 | 2 | 9 |
-2 | 2533 | 2920 | 5453 | |
1 | DAYS | 52 | 68 | 120 |
2 | WEEKS | 66 | 65 | 131 |
3 | MONTHS | 68 | 87 | 155 |
4 | YEARS | 37 | 33 | 70 |
hy407pa: Did your deceased parent have a signed Durable Power of Attorney for Health Care, naming someone who could make decisions about his/her medical treatment?
Data source: Graduate Participant or Proxy
Collected in: 2011
Mode: In person & telephone
Source variables: HY201REC, y_wcp1
Frequencies | ||||
---|---|---|---|---|
Value | Label | Male | Female | Total |
. | System missing - NR | 2146 | 2019 | 4165 |
-30 | NOT PART OF MOSAQ | 68 | 116 | 184 |
-27 | NOT ASKED OF PROXY | 14 | 16 | 30 |
-5 | PARTIAL INTERVIEW | 7 | 2 | 9 |
-3 | REFUSED | 2 | 0 | 2 |
-2 | 2286 | 2644 | 4930 | |
-1 | DON'T KNOW | 57 | 49 | 106 |
1 | YES | 341 | 427 | 768 |
2 | NO | 70 | 53 | 123 |
hy808pa: Who held the Durable Power of Attorney for Health Care for your deceased parent?
Data source: Graduate Participant or Proxy
Collected in: 2011
Mode: In person & telephone
Source variables: HY201REC, HY407PA, y_wcp1a, c_y_wcp1a
Frequencies | ||||
---|---|---|---|---|
Value | Label | Male | Female | Total |
. | System missing - NR | 2146 | 2019 | 4165 |
-30 | NOT PART OF MOSAQ | 68 | 116 | 184 |
-27 | NOT ASKED OF NON-SPOUSE PROXY | 14 | 16 | 30 |
-5 | PARTIAL INTERVIEW | 7 | 2 | 9 |
-3 | REFUSED | 1 | 0 | 1 |
-2 | 2415 | 2746 | 5161 | |
-1 | DON'T KNOW | 5 | 2 | 7 |
1 | SPOUSE | 10 | 13 | 23 |
2 | SPOUSE AND CHILD/CHILDREN | 0 | 2 | 2 |
10 | SON | 129 | 1 | 130 |
11 | MULTIPLE SONS | 4 | 1 | 5 |
12 | DAUGHTER | 3 | 187 | 190 |
13 | MULTIPLE DAUGHTERS | 0 | 5 | 5 |
14 | CHILD/CHILD-IN-LAW/GRANDCHILD (M OR F) | 170 | 188 | 358 |
15 | MULTIPLE CHILDREN (GENDER UNSPECIFIED) | 3 | 4 | 7 |
16 | MULTIPLE CHILDREN, MIXED SEX | 6 | 7 | 13 |
22 | SISTER | 0 | 1 | 1 |
23 | MULTIPLE SISTERS | 0 | 1 | 1 |
30 | GRANDSON | 1 | 0 | 1 |
33 | NEPHEW | 1 | 0 | 1 |
41 | BROTHER-IN-LAW | 0 | 1 | 1 |
42 | SON-IN-LAW | 0 | 2 | 2 |
50 | GRANDDAUGHTER | 0 | 2 | 2 |
62 | DAUGHTER-IN-LAW | 1 | 0 | 1 |
70 | SON AND DAUGHTER-IN-LAW | 1 | 0 | 1 |
80 | GRANDCHILD (GENDER UNSPECIFIED) | 1 | 5 | 6 |
105 | FRIEND(S) | 1 | 1 | 2 |
120 | PHYSICIAN/HEALTHCARE PROFESSIONAL | 1 | 2 | 3 |
122 | NURSING HOME, ASSISTED LIVING, OR OTHER LONG-TERM CARE FACILITY | 1 | 0 | 1 |
132 | ATTORNEY/LAWYER | 0 | 1 | 1 |
134 | TRUST/REVOCABLE TRUST/TRUSTEE(S) | 1 | 0 | 1 |
173 | MULTIPLE: OTHER RELATIVE(S) AND NON-RELATIVE(S) | 0 | 1 | 1 |
199 | OTHER | 1 | 0 | 1 |
hy409pa: What role did the Durable Power of Attorney for Health Care appointment play in the last week of your deceased parent's life?
Data source: Graduate Participant or Proxy
Collected in: 2011
Mode: In person & telephone
Source variables: HY201REC, HY407PA, y_wcp2
Frequencies | ||||
---|---|---|---|---|
Value | Label | Male | Female | Total |
. | System missing - NR | 2146 | 2019 | 4165 |
-30 | NOT PART OF MOSAQ | 68 | 116 | 184 |
-27 | NOT ASKED OF PROXY | 14 | 16 | 30 |
-5 | PARTIAL INTERVIEW | 7 | 2 | 9 |
-4 | NOT ASCERTAINED | 0 | 1 | 1 |
-2 | 2415 | 2746 | 5161 | |
-1 | DON'T KNOW | 8 | 15 | 23 |
1 | IT HELPED A GREAT DEAL | 98 | 123 | 221 |
2 | IT HELPED A LITTLE | 43 | 43 | 86 |
3 | IT HAD NO EFFECT | 186 | 230 | 416 |
4 | IT CAUSED SOME PROBLEMS | 6 | 8 | 14 |
5 | IT CAUSED MAJOR PROBLEMS | 0 | 7 | 7 |
hy410pa: Did your deceased parent have a signed Living Will, giving directions for the kind of medical treatment he/she wanted?
Data source: Graduate Participant or Proxy
Collected in: 2011
Mode: In person & telephone
Source variables: HY201REC, y_wcp3
Frequencies | ||||
---|---|---|---|---|
Value | Label | Male | Female | Total |
. | System missing - NR | 2146 | 2019 | 4165 |
-30 | NOT PART OF MOSAQ | 68 | 116 | 184 |
-27 | NOT ASKED OF PROXY | 14 | 16 | 30 |
-5 | PARTIAL INTERVIEW | 7 | 2 | 9 |
-3 | REFUSED | 2 | 0 | 2 |
-2 | 2286 | 2644 | 4930 | |
-1 | DON'T KNOW | 65 | 68 | 133 |
1 | YES | 287 | 353 | 640 |
2 | NO | 116 | 108 | 224 |
hy411pa: What role did the Living Will play in the last week of your deceased parent's life?
Data source: Graduate Participant or Proxy
Collected in: 2011
Mode: In person & telephone
Source variables: HY201REC, HY410PA, y_wcp4
Frequencies | ||||
---|---|---|---|---|
Value | Label | Male | Female | Total |
. | System missing - NR | 2146 | 2019 | 4165 |
-30 | NOT PART OF MOSAQ | 68 | 116 | 184 |
-27 | NOT ASKED OF PROXY | 14 | 16 | 30 |
-5 | PARTIAL INTERVIEW | 7 | 2 | 9 |
-2 | 2469 | 2820 | 5289 | |
-1 | DON'T KNOW | 9 | 12 | 21 |
1 | IT HELPED A GREAT DEAL | 93 | 110 | 203 |
2 | IT HELPED A LITTLE | 34 | 41 | 75 |
3 | IT HAD NO EFFECT | 148 | 177 | 325 |
4 | IT CAUSED SOME PROBLEMS | 3 | 9 | 12 |
5 | IT CAUSED MAJOR PROBLEMS | 0 | 4 | 4 |
hy412pa: Was your deceased parent able to make decisions during the last week of his/her life?
Data source: Graduate Participant or Proxy
Collected in: 2011
Mode: In person & telephone
Source variables: HY201REC, y_wcp5
Frequencies | ||||
---|---|---|---|---|
Value | Label | Male | Female | Total |
. | System missing - NR | 2146 | 2019 | 4165 |
-30 | NOT PART OF MOSAQ | 68 | 116 | 184 |
-27 | NOT ASKED OF PROXY | 14 | 16 | 30 |
-5 | PARTIAL INTERVIEW | 7 | 2 | 9 |
-3 | REFUSED | 2 | 0 | 2 |
-2 | 2286 | 2644 | 4930 | |
-1 | DON'T KNOW | 11 | 21 | 32 |
1 | YES | 209 | 230 | 439 |
2 | NO | 248 | 278 | 526 |
hy413pa: Did your deceased parent have specific wishes or plans about the types of medical treatment he/she did or did not want while dying?
Data source: Graduate Participant or Proxy
Collected in: 2011
Mode: In person & telephone
Source variables: HY201REC, y_wcp6
Frequencies | ||||
---|---|---|---|---|
Value | Label | Male | Female | Total |
. | System missing - NR | 2146 | 2019 | 4165 |
-30 | NOT PART OF MOSAQ | 68 | 116 | 184 |
-27 | NOT ASKED OF PROXY | 14 | 16 | 30 |
-5 | PARTIAL INTERVIEW | 7 | 2 | 9 |
-3 | REFUSED | 2 | 1 | 3 |
-2 | 2286 | 2644 | 4930 | |
-1 | DON'T KNOW | 69 | 64 | 133 |
1 | YES | 208 | 277 | 485 |
2 | NO | 191 | 187 | 378 |
hy414pa: During the last week of your deceased parent's life, was there any medical procedure or treatment that happened to your parent that was not consistent with his/her previously stated wishes or plans about the types of medical treatment he/she did or did not want while dying?
Data source: Graduate Participant or Proxy
Collected in: 2011
Mode: In person & telephone
Source variables: HY201REC, HY413PA, y_wcp8
Frequencies | ||||
---|---|---|---|---|
Value | Label | Male | Female | Total |
. | System missing - NR | 2146 | 2019 | 4165 |
-30 | NOT PART OF MOSAQ | 68 | 116 | 184 |
-27 | NOT ASKED OF PROXY | 14 | 16 | 30 |
-5 | PARTIAL INTERVIEW | 7 | 2 | 9 |
-2 | 2548 | 2896 | 5444 | |
-1 | DON'T KNOW | 3 | 5 | 8 |
1 | YES | 5 | 15 | 20 |
2 | NO | 198 | 257 | 455 |
3 | SUDDEN DEATH/INAP | 2 | 0 | 2 |
hy415re: Did you provide care for your deceased parent at the end of his/her life?
Data source: Graduate Participant or Proxy
Collected in: 2011
Mode: In person & telephone
Source variables: HY201REC, y_wdzz1
Frequencies | ||||
---|---|---|---|---|
Value | Label | Male | Female | Total |
. | System missing - NR | 2146 | 2019 | 4165 |
-30 | NOT PART OF MOSAQ | 68 | 116 | 184 |
-27 | NOT ASKED OF PROXY | 14 | 16 | 30 |
-5 | PARTIAL INTERVIEW | 7 | 2 | 9 |
-4 | NOT ASCERTAINED | 45 | 44 | 89 |
-3 | REFUSED | 3 | 0 | 3 |
-2 | 2286 | 2644 | 4930 | |
-1 | DON'T KNOW | 3 | 4 | 7 |
1 | YES | 133 | 170 | 303 |
2 | NO | 279 | 300 | 579 |
3 | SUDDEN DEATH/INAP | 7 | 11 | 18 |
hy416re: Numeric component for 'How often did you provide care for your deceased parent at the end of his/her life?'
Data source: Graduate Participant or Proxy
Collected in: 2011
Mode: In person & telephone
Source variables: HY201REC, HY415RE, y_wdzz2_1
Frequencies | ||||
---|---|---|---|---|
Value | Label | Male | Female | Total |
. | System missing - NR | 2146 | 2019 | 4165 |
-30 | NOT PART OF MOSAQ | 68 | 116 | 184 |
-27 | NOT ASKED OF PROXY | 14 | 16 | 30 |
-5 | PARTIAL INTERVIEW | 7 | 2 | 9 |
-2 | 2623 | 3003 | 5626 | |
-1 | DON'T KNOW | 11 | 17 | 28 |
0 | NEVER | 5 | 3 | 8 |
1 - 2 | 34 | 32 | 66 | |
3 - 6 | 23 | 31 | 54 | |
7 - 14 | 22 | 34 | 56 | |
16 - 100 | 20 | 33 | 53 | |
120 - 365 | 18 | 20 | 38 |
hy417re: Time units corresponding to numeric component for 'How often did you provide care for your deceased parent at the end of his/her life?'
Data source: Graduate Participant or Proxy
Collected in: 2011
Mode: In person & telephone
Source variables: HY201REC, HY415RE, y_wdzz2_1, y_wdzz2_2, y_wdzz2_3
Frequencies | ||||
---|---|---|---|---|
Value | Label | Male | Female | Total |
. | System missing - NR | 2146 | 2019 | 4165 |
-30 | NOT PART OF MOSAQ | 68 | 116 | 184 |
-27 | NOT ASKED OF PROXY | 14 | 16 | 30 |
-5 | PARTIAL INTERVIEW | 7 | 2 | 9 |
-4 | NOT ASCERTAINED | 2 | 2 | 4 |
-2 | 2639 | 3023 | 5662 | |
1 | MINUTES PER HOUR | 2 | 1 | 3 |
2 | MINUTES PER DAY | 3 | 1 | 4 |
3 | MINUTES PER WEEK | 0 | 1 | 1 |
6 | HOURS PER DAY | 21 | 46 | 67 |
7 | HOURS PER WEEK | 5 | 14 | 19 |
9 | HOURS PER YEAR | 2 | 0 | 2 |
10 | DAYS PER WEEK | 38 | 36 | 74 |
11 | DAYS PER MONTH | 9 | 8 | 17 |
12 | DAYS PER YEAR | 22 | 25 | 47 |
13 | WEEKS PER MONTH | 4 | 5 | 9 |
14 | WEEKS PER YEAR | 2 | 4 | 6 |
15 | MONTHS PER YEAR | 7 | 7 | 14 |
hy418pa: During the last week of his/her life, how much emotional distress did your deceased parent experience?
Data source: Graduate Participant or Proxy
Collected in: 2011
Mode: In person & telephone
Source variables: HY201REC, y_wdzz3
Frequencies | ||||
---|---|---|---|---|
Value | Label | Male | Female | Total |
. | System missing - NR | 2146 | 2019 | 4165 |
-30 | NOT PART OF MOSAQ | 68 | 116 | 184 |
-27 | NOT ASKED OF PROXY | 14 | 16 | 30 |
-5 | PARTIAL INTERVIEW | 7 | 2 | 9 |
-4 | NOT ASCERTAINED | 45 | 44 | 89 |
-3 | REFUSED | 2 | 0 | 2 |
-2 | 2286 | 2644 | 4930 | |
-1 | DON'T KNOW | 55 | 51 | 106 |
1 | NO DISTRESS | 147 | 149 | 296 |
2 | A LITTLE DISTRESS | 107 | 121 | 228 |
3 | MODERATE DISTRESS | 59 | 87 | 146 |
4 | QUITE A BIT OF DISTRESS | 28 | 40 | 68 |
5 | A LOT OF DISTRESS | 27 | 37 | 64 |
hy419re: In your opinion, did your deceased parent experience a 'good death'?
Data source: Graduate Participant or Proxy
Collected in: 2011
Mode: In person & telephone
Source variables: HY201REC, y_wdzz5
Frequencies | ||||
---|---|---|---|---|
Value | Label | Male | Female | Total |
. | System missing - NR | 2146 | 2019 | 4165 |
-30 | NOT PART OF MOSAQ | 68 | 116 | 184 |
-27 | NOT ASKED OF PROXY | 14 | 16 | 30 |
-5 | PARTIAL INTERVIEW | 7 | 2 | 9 |
-4 | NOT ASCERTAINED | 45 | 44 | 89 |
-3 | REFUSED | 2 | 2 | 4 |
-2 | 2286 | 2644 | 4930 | |
-1 | DON'T KNOW | 21 | 27 | 48 |
1 | YES | 364 | 403 | 767 |
2 | NO | 38 | 53 | 91 |